Marijuana Rated Most Effective for Treating Fibromyalgia
Medical marijuana is far more effective at treating symptoms of fibromyalgia than any of the three prescription drugs approved by the Food and Drug Administration to treat the disorder.
That is one of the surprise findings in an online survey of over 1,300 fibromyalgia patients conducted by the National Pain Foundation and National Pain Report.
The FDA has approved only three drugs – Cymbalta, Lyrica and Savella — for the treatment of fibromyalgia. Although they generate billions of dollars in annual sales for Pfizer, Eli Lilly, Forest Laboratories and other drug makers, most who have tried the medications say they don’t work.
The National Institutes of Health estimates that 5 million Americans suffer from fibromyalgia, a poorly understood disorder characterized by deep tissue pain, fatigue, headaches, depression, and lack of sleep. There is no known cure and the disorder is difficult to treat.
“Fibromyalgia is devastating for those who must live in its grip. There is much we do not understand. We need innovative ‘out of the box’ solutions that change the face of this disease,” said Dan Bennett, MD, an interventional spine and pain surgical physician in Denver, Colorado, who is chairman of the National Pain Foundation.
Many who responded to the survey said they had tried all three FDA approved drugs.
“The prescriptions that are available for treatment have more negative side effects than positive aspects,” said one fibromyalgia sufferer.
“I haven’t found anything! Please find a cure or at least a medicine that will take our pain away,” said another.
Asked to rate the effectiveness of Eli Lilly’s Cymbalta (Duloxetine), 60% of those who tried the drug said it did not work for them. Only 8% said it was very effective and 32% said it helps a little.
Among those who tried Pfizer’s Lyrica (Pregabalin), 61% said it did not work at all. Only 10% said it was very effective and 29% said it helps a little.
Asked to rate the effectiveness of Forest Laboratories’ Savella (Milnacipran), 68% of those who said they tried the drug said it didn’t work. Only 10% said it was very effective and 22% said it helps a little.
About 70% of the people who responded to the survey said they had not tried medical marijuana – which is not surprising given that it is still illegal in most states and many countries. But those who have tried marijuana said it was far more effective than any of the FDA-approved drugs.
Sixty-two percent who have tried cannabis said it was very effective at treating their fibromyalgia symptoms. Another 33% said it helped a little and only 5% said it did not help at all.
“I’ve found nothing that has worked for me, apart from marijuana,” said one survey respondent.
“Nothing but medical marijuana has made the greatest dent in the pain and mental problems,” said another.
“Marijuana does help a LOT it numbs the pain. But it doesn’t last long and it makes your brain foggy,” wrote another fibromyalgia sufferer.
Survey respondents said massage, swimming, acupuncture, muscle relaxers and other alternative treatments also helped relieve their symptoms. Many said they take opioids to relieve their pain – although narcotic painkillers are generally not prescribed to treat fibromyalgia.
Other survey findings:
- Four out of ten (43%) fibromyalgia sufferers feel their physician is not knowledgeable about the disorder.
- Over a third (35%) feel their physician does not take their fibromyalgia seriously.
- 45% feel their family and friends do not take their fibromyalgia seriously.
- Nearly half (49%) said their fibromyalgia symptoms began at a relatively young age (18-34).
- Only 11% were diagnosed with fibromyalgia within the first year of symptoms.
- 44% said it took five or more years before they were diagnosed with fibromyalgia.
Many survey respondents lamented that the disorder had taken over their lives, leaving them socially isolated, fatigued and in constant pain.
“I was once an active person and have now virtually become a hermit due to this disease,” said one.
“The worst thing about having fibromyalgia is disappointing loved ones when I can’t do things with them,” wrote one fibromyalgia sufferer.
“Having fibromyalgia is a life sentence. One simply cannot have a productive life living with this disease,” said another.
The 1,339 people who participated in the survey were self-selected as fibromyalgia sufferers. Ninety-six percent of them were female.
This was the second online survey of pain patients conducted by the National Pain Foundation and National Pain Report. The first survey found that over half of patients worry that they are perceived as “drug addicts” by pharmacists. Eight out of ten said they had stopped seeing a doctor because they felt they were treated poorly.
Source: National Pain Report
I have fibromyalgia and I guarantee that on the days I can’t walk or am shaking too much that fibromyalgia controls my day. Marijuana is the only thing that gets me back in control of my own being. I then have family courts threatening to take my child of me for being a drug addict which I am not. Please help me be able to use my medicine to live life to the fullest and not be afraid that I am going to loose my babies.
Thanks for sharing your story, Karlene! Glad to hear you’re finding relief with cannabis. Keep up the good fight, and blessings to you!
I too have fibromyalgia for a about 30 years and have suffered immensely. I have been accused of drug addiction it’s all in my head. That there is nothing wrong with me. It took about 10 years to be diagnosed. I have suffered all these years have tried every drug have tried every thing the doctors have suggested physical therapy exercise you name it I’ve tried it. The marijuana is the only thing that has helped with the pain and I have more freedom of movement and can actually enjoy doing something. I do not like smoking it. I don’t like the high but in Oregon it is now legal and I have tried a syrup that is amazing. I have very very little high it numbs the pain it gives me more energy because I’m in less pain and I take Cymbalta and methotrexate for my RA and am considering slowly getting off both and drinking the syrup because it is so much better as far as side effects I don’t feel any side effects I truly call this my miracle drug just hope other people Will consider this. I know a lot of people have a problem because it’s been illegal for so long but I am 64 years old and I will continue to use it
Thanks for sharing your testimony, Grace! So happy to hear that cannabis is working for you. Bless you!